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Palliative Care: Palliative Care Education

Palliative Care Rotation for R1s

Articles

Meier DE. ‘I Don’t Want Jenny To Think I’m Abandoning Her’: Views On Overtreatment. Health Affairs 2014 May 33(5) 895-898
Morrison RS, Meier DE. Palliative Care. New England Journal of Medicine 2004 June 17; 320(25) 2582-2590.
Definition of Palliative Care
CAPC (Center to Advance Palliative Care)

Articles

Morrison R, Penrod JD, Cassel J, et al. Cost Savings Associated With US Hospital Palliative Care Consultation Programs. Arch Intern Med. 2008;168(16):1783-1790.
Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF, Billings JA, Lynch TJ. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med. 2010 Aug 19;363(8):73
Morrison R, Siu AL. Survival in End-Stage Dementia Following Acute Illness. JAMA. 2000;284(1):47-52.
Fadul N, Elsayem A, Palmer JL, Del Fabbro E, Swint K, Li Z, Poulter V, Bruera E. Supportive versus palliative care: what's in a name?: a survey of medical oncologists and midlevel providers at a comprehensive cancer center. Cancer. 2009 May 1;115(9):2013

Resources and References from “How to Design, Build, and Pay for Community Based Palliative Care”

The Community-Based Palliative Care (CBPC) Resource Center
Palliative Care Network of Wisconsin
National Consensus Project for Quality Palliative Care Clinical Practice Guidelines for Quality Palliative Care (NCP guidelines), 3rd edition (March 2013)
Descriptions of Palliative Care Practices/Core Components
Dying in America: IOM Committee’s Proposed Core Components of Quality End-of-Life Care
Descriptions of Palliative Care Practices/Core Components
Improving the Care of Serious Illness Though Innovative Payer-Provider Partnerships: A Palliative Care Toolkit and Resource Guide (see pages 10-11)
Descriptions of Palliative Care Practices/Core Components
Up Close: A Field Guide to Community-based Palliative Care in California. California HealthCare Foundation (includes 4 case studies)
Descriptions of Palliative Care Practices/Core Components
CSU Institute for Palliative Care - online and in-person learning for current and future palliative care professionals.
Education and Training
Education in Palliative and End of Life Care (EPEC)
Education and Training
End of Life Nursing Education Consortium (ELNEC):
Education and Training
Palliative Care Tools and Resources, curated by the Coalition for Compassionate Care of California (CCCC)
Making the Case
“Twenty Tips for Writing a Compelling Proposal for Creating or Expanding a Palliative Care Program”
Making the Case
The Business Case for Palliative Care
Making the Case
Metrics and Measurement for Palliative Care
Making the Case
Creating Data-Driven Proposals and Presentations for your Palliative Care Program
Making the Case
The CHCF PC Measure Menu
Metrics and Measure Sets
National Quality Forum/Quality Positioning System
Metrics and Measure Sets
American Academy of Hospice and Palliative Medicine/Hospice and Palliative Nurses Association/ The “Measuring What Matters” initiative
Metrics and Measure Sets
American Society of Clinical Oncology/The Quality Oncology Practice Initiative
Metrics and Measure Sets
University of North Carolina School of Medicine /PEACE Hospice and Palliative Care Quality Measures
Metrics and Measure Sets
Smith TJ, Temin S, Alesi ER, Abernethy AP, Balboni TA, Basch EM, Ferrell BR, Loscalzo M, Meier DE, Paice JA, Peppercorn JM, Somerfield M, Stovall E, Von Roenn JH. American Society of Clinical Oncology provisional clinical opinion: the integration of palli
Recommended Reading
Dy SM, Kiley KB, Ast K. Measuring what matters: top-ranked quality indicators for hospice and palliative care from the American Academy of Hospice and Palliative Medicine and Hospice and Pa
Recommended Reading
Kamal AH, Gradison M, Maguire JM, Taylor D, Abernethy AP. Quality measures for palliative care in patients with cancer: a systematic review. J Oncol Pract. 2014 Jul;10(4):281-7.
Recommended Reading
Rabow M, Kvale E, Barbour L, Cassel JB, Cohen S, Jackson V, Luhrs C, Nguyen V, Rinaldi S, Stevens D, Spragens L, Weissman D. Moving upstream: a review of the evidence of the impact of outpatient palliative care. J Palliat Med. 2013 Dec;16(12):1540-9.
Recommended Reading

Videos

Health Affairs

Health Affairs July 2017: Advanced Illness & End-Of-Life Care

Presentations

Palliative Care Grand Rounds April 2016
Defragmenting Care for Complex Hospitalized Patients: The Role of the Interdisciplinary Palliative Care Team

Twenty Useful References for “Making the Case” for Community-based Palliative Care

Developed by Kathleen Kerr, with support from the Coalition for Compassionate Care of California, January 2016

Teno JM, Freedman VA, Kasper JD, Gozalo P, Mor V. Is Care for the Dying Improving in the United States? J Palliat Med. 2015 Aug;18(8):662-6.
Focus/Setting: Need for PC
Patient Population: Multiple disease groups
Smith AK, McCarthy E, Weber E, Cenzer IS, Boscardin J, Fisher J, Covinsky K. Half Of Older Americans Seen In Emergency Department In Last Month Of Life; Most Admitted To Hospital, And Many Die There. Health Affairs, 31, no.6 (2012):1277-1285.
Focus/Setting: Need for PC
Patient Population: Multiple disease groups
Teno JM, Gozalo PL, Bynum JP, Leland NE, Miller SC, Morden NE, Scupp T, Goodman DC, Mor V. Change in End-of-Life Care for Medicare Beneficiaries Site of Death, Place of Care, and Health Care Transitions in 2000, 2005, and 2009. JAMA. 2013 Feb 6;309(5):470
Focus/Setting: Need for PC
Patient Population: Multiple disease groups
Mack JW, Chen K, Boscoe FP, Gesten FC, Roohan PJ, Weeks JC, Schymura MJ, Schrag D. Underuse of hospice care by Medicaid-insured patients with stage IV lung cancer in New York and California. J Clin Oncol. 2013 Jul 10;31(20):2569- 79.
Focus/Setting: Need for PC
Patient Population: Cancer
Blackhall LJ, Read P, Stukenborg G, Dillon P, Barclay J, Romano A, Harrison J. CARE Track for Advanced Cancer: Impact and Timing of an Outpatient Palliative Care Clinic. J Palliat Med. 2016 Jan;19(1):57-63.
Focus/Setting: Need for PC
Patient Population: Cancer
Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF, Billings JA, Lynch TJ. Early Palliative Care for Patients with Metastatic Non– Small-Cell Lung Cancer. N Engl J Med. 2010 Aug 19;363(8):73
Focus/Setting: PC Clinics
Patient Population: Cancer
Greer JA, Pirl WF, Jackson VA, Muzikansky A, Lennes IT, Heist RS, Gallagher ER, Temel JS. Effect of early palliative care on chemotherapy use and end-of-life care in patients with metastatic nonsmall- cell lung cancer. J Clin Oncol 2012;30:394- 400.
Focus/Setting: PC Clinics
Patient Population: Cancer
Yennurajalingam S, Urbauer DL, Casper KL, Reyes- Gibby CC, Chacko R, Poulter V, Bruera E. Impact of a Palliative Care Consultation Team on Cancer-Related Symptoms in Advanced Cancer Patients Referred to an Outpatient Supportive Care Clinic. J Pain Symptom
Focus/Setting: PC Clinics
Patient Population: Cancer
Follwell M, Burman D, Le LW, Wakimoto K, Seccareccia D, Bryson J, Rodin G, Zimmermann C. Phase II Study of an Outpatient Palliative Care Intervention in Patients With Metastatic Cancer. J Clin Oncol 2009;27:206–213.
Focus/Setting: PC Clinics
Patient Population: Cancer
Hui D, Kim SH, Roquemore J, Dev R, Chisholm G, Bruera E. Impact of Timing and Setting of Palliative Care Referral on Quality of End-of-Life Care in Cancer Patients. Cancer. 2014 Jun 1;120(11):1743-9.
Focus/Setting: PC Clinics
Patient Population: Cancer
Scibetta C, Kerr K, Mcguire J, Rabow MW. The Costs of Waiting: Implications of the Timing of Palliative Care Consultation among a Cohort of Decedents at a Comprehensive Cancer Center. J Palliat Med. 2016 Jan;19(1):69-75.
Focus/Setting: PC Clinics
Patient Population: Cancer
Brumley R, Enguidanos S, Jamison P, Seitz R, Morgenstern N, Saito S, McIlwane J, Hillary K, Gonzalez J. Increased Satisfaction with Care and Lower Costs: Results of a Randomized Trial of In- Home Palliative Care. J Am Geriatr Soc. 2007 Jul;55(7):993-1000.
Focus/Setting: Home-PC
Patient Population: Multiple disease groups
Chen CY, Thorsteinsdottir B, Cha SS, Hanson GJ, Peterson SM, Rahman PA, Naessens JM, Takahashi PY. Health Care Outcomes and Advance Care Planning in Older Adults Who Receive Home-Based Palliative Care: A Pilot Cohort Study. J Palliat Med. 2015 Jan;18(1):3
Focus/Setting: Home-PC
Patient Population: Multiple disease groups
Kerr CW, Tangeman JC, Rudra CB, Grant PC, Luczkiewicz DL, Mylotte KM, Riemer WD, Marien MJ, Serehali AM. Clinical Impact of a Home- Based Palliative Care Program: A Hospice-Private Payer Partnership. J Pain Symptom Manage. 2014 Nov;48(5):883-92.e1
Focus/Setting: Home-PC
Patient Population: Multiple disease groups
Kerr CW, Donohue KA, Tangeman JC, Serehali AM, Knodel SM, Grant PC, Luczkiewicz DL, Mylotte K, Marien MJ. Cost Savings and Enhanced Hospice Enrollment with a Home-Based Palliative Care Program Implemented as a Hospice–Private Payer Partnership. J Palliat
Focus/Setting: Home-PC
Patient Population: Multiple disease groups
Seow H, Brazil K, Sussman J, Pereira J, Marshall D, Austin PC, Husain A, Rangrej J, Barbera L. Impact of community based, specialist palliative care teams on hospitalisations and emergency department visits late in life and hospital deaths: a pooled analy
Focus/Setting: Home-PC
Patient Population: Multiple disease groups
Bakitas M, Lyons KD, Hegel MT, Balan S, Brokaw FC, Seville J, Hull JG, Li Z, Tosteson TD, Byock IR, Ahles TA. Effects of a Palliative Care Intervention on Clinical Outcomes in Patients With Advanced Cancer The Project ENABLE II Randomized Controlled Trial
Focus/Setting: Distance PC
Patient Population: Cancer
Dionne-Odom JN, Azuero A, Lyons KD, Hull JG, Tosteson T, Li Z, Frost J, Dragnev KH, Akyar I, Hegel MT, Bakitas MA. Benefits of Early Versus Delayed Palliative Care to Informal Family Caregivers of Patients With Advanced Cancer: Outcomes From the ENABLE II
Focus/Setting: Distance PC
Patient Population: Cancer
Schenker Y, White D, Rosenzweig M, Chu E, Moore C, Ellis P, Nikolajski P, Ford C, Tiver G, McCarthy L, Arnold R. Care Management by Oncology Nurses To Address Palliative Care Needs: A Pilot Trial To Assess Feasibility, Acceptability, and Perceived Effecti
Focus/Setting: Primary PC
Patient Population: Cancer
Spettell CM, Rawlins WS, Krakauer R, Fernandes J, Breton ME, Gowdy W, Brodeur S, MacCoy M, Brennan TA. A Comprehensive Case Management Program To Improve Palliative Care. J Palliat Med. 2009 Sep;12(9):827-32.
Focus/Setting: Case Management
Patient Population: Multiple Disease Groups

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